My name is David Frey. I’m 60 years old. I live in Houston, Texas. I suffer from Polycystic Kidney Disease and had to have a transplant at age 49. It’s a highly genetic disease. My mother and two older brothers died of the same disease. They were not fortunate enough to receive a kidney transplant. I have one other brother who also received a kidney transplant and he is alive today.
How has receiving a kidney transplant has changed your daily routine and overall quality of life?
I was fortunate enough to find a living donor angel, Erin Neth, who donated one of her kidneys to me. I’m so luckily I never had to live on a kidney dialysis machine. However, I did have a brother who lived on a kidney dialysis machine and it severely restricted where he could go and what he could do. He spent 3 days a week sitting on a dialysis machine for 4 to 5 hours. After being on that machine, he was extremely exhausted. My brother had to be very careful with the foods he ate and he was always low on energy. He rarely had enough energy to do any type of physical activity. After I received a kidney transplant, I started a very strict Health regimen of eating Whole Foods and lifting weights on a daily basis. I felt healthy and strong and invigorated.
What were the most significant emotional and psychological adjustments you had to make after receiving the kidney transplant?
To be honest, there’s only two emotional and psychological elements that I've had to deal with after my kidney transplant. The first one is making sure that I respect my donor by living an ultra-healthy life. One of my greatest nightmares would be having my transplanted kidney go into rejection because of unhealthy choices. The second one is to ensure that I live my life in a way that blesses the lives of others so that my donor’s sacrifice is honored. I want to make sure her sacrifice for me was worth it. This is ever present on my mind.
How did you navigate the uncertainties and challenges during the kidney transplant process, and what kept you motivated?
Unlike others, I did not have to go through a long process to find my donor. Through a series of many miracles, my donor showed up. At that time, she was the mother of four very young children. She was the wife of a friend of mine. My wife was the first person to test for me and she was not a match. The second person who tested had a medical issue that was discovered in the testing process. The thir person who tested actually found a tumor on her kidney through the testing process. It was a miracle! The next week she had it removed. It was one of those tumors that you cannot feel until it becomes lethal. She was blessed for volunteering. It saved her life. The fourth person who tested was my donor.
How has your relationship with your kidney donor evolved post-transplant?
My angel donor was the wife of my good friend. We have continued our close relationship over the years. I am forever grateful for her. It was because of her sacrifice that I was able to watch my kids grow up and graduate from high school and become adults. As you know, kidneys are what filter the impurities out of your body. Every time you urinate you know that your kidneys are functioning properly. I know this sounds weird, but when I use the restroom, it reminds me of how grateful I am for my angel donor.
How has your relationship with your kidney donor evolved post-transplant?
My angel donor was the wife of my good friend. We have continued our close relationship over the years. I am forever grateful for her. It was because of her sacrifice that I was able to watch my kids grow up and graduate from high school and become adults. As you know, kidneys are what filter the impurities out of your body. Every time you urinate you know that your kidneys are functioning properly. I know this sounds weird, but when I use the restroom, it reminds me of how grateful I am for my angel donor.
Reflecting on your transplant experience, what insights or lessons have you gained about resilience and coping with adversity?
How has your support system (family, friends, healthcare team) contributed to your recovery and adaptation to life post-transplant?
I was fortunate to have a lot of support from my family, friends, doctors and nurses and others. My wife has been by my side every step of the way. she was the first one to test to donate her kidney to me. she's been there through all my ups and downs. and I consider myself extremely fortunate to have her, and my children in our lives.
Can you discuss any lifestyle changes you've embraced since receiving the kidney transplant and their impact on your well-being?
As I mentioned previously, I wanted to make sure that I honored my donor by being as healthy as I could be. I stopped drinking sodas. I drink only water. I started eating only Whole Foods with single ingredients. and I started lifting weights 6 days a week. I feel like I became more healthy after my kidney transplant then at any other time in my life. I felt like I owed that to my angel donor for the great sacrifice that she made for me. but I also did it for myself, just to feel more healthy, strong and vigorous.
Looking back, what advice would you offer to others awaiting a kidney transplant or considering becoming donors?
ADVICE #1 - I had a pretty simple path to receiving a live donor transplant. I never had to go on dialysis. a big reason for that was because I have a lot of friends. Most of my friends I've met through my church. These are the altruistic type of friends that would sacrifice for another person. so I had several people lining up to test for me willing to donate their kidney to save my life. So, my piece of advice would be to start to create a following on social media. Start to create lots of friendships and relationships on social media. Join a healthy well-balanced Church of your religious preference and start making a lot of friends there. Try to expand your network of people that know you, like you and trust you.
Whenever anyone says that they would be willing to test for you in the future, write down their name and email address so if the time comes you can reach out to them.
ADVICE #2 - If you are considering donating your kidney to someone, God bless you. You are an angel. You will be doing something for somebody that they could never do to themselves. Donating a kidney is a very state procedure. It happens thousands of times every day with no negative instances. I can't imagine doing anything more spectacular and great than donating an organ to another person. You literally become their life savior. It is the ultimate act of humility and love. You'll be able to look back on your life to this one decision with great self-appreciation and love.